Rachel Fairbank

Rachel Fairbank

@sweetsciencewriter.bsky.social

Science journalist, with bylines in Nature, National Geographic, the New York Times, the Washington Post and the Houston Chronicle. I cover a mixture of health topics, with a focus on conditions such as autism, ADHD, ME/CFS, POTS and Long COVID.

1K followers279 following820 posts

Rachel Fairbank reposted

2.7.8 ✨EXPERIMENTER BIAS✨ Most often unintentional, this is when the researcher indicates to the subjects in some way the desired result. This is why blinding and double-blinding is so important. Let's delve into that a little more deeply. #SundayStats

Rachel Fairbank reposted

In MAGA, parental estrangement is a big issue — and parents are held out as blameless victims. I suspect that's one reason why Vivek Ramaswamy ran an ad celebrating Amy Acton's vile mother. And why MAGA — including Vance and Trump — are backing him. www.salon.com/2026/10/23/r...

salon.comRamaswamy's ad exposes MAGA’s obsession with parental estrangementMany Republicans have kids who won't talk to them — and they blame their offspring

In the past decade, we’ve seen cystic fibrosis go from being a devastating condition, with an average life expectancy of 35, to being a manageable chronic condition, where people can expect to live a full, long life.

Social media loves talking about how everything is getting worse. But what’s something that you’ve seen get _better_ in your lifetime?

“My life was so amazing leading up to this and was so incredible, and I was so grateful for everything that had been going on. And then just boom, like, everything got taken away." Many of us had full, rich lives before getting sick. Our losses are immeasurable.

kpbs.orgPhysics Girl spent her life explaining science. Then science couldn't explain her illnessPhysics Girl spent years explaining the mysteries of the universe. Then she became the mystery herself. Dianna Cowern and her husband, Kyle Kitzmiller, share what happened when a devastating illness c...

With regards to Amy Acton: I don’t think people fully grasp the absolute devastation of one parental figure committing unimaginable harm, while the other parental figure turns a blind eye. The combination of the two destroys your faith in people, in unimaginable, inalterable ways.

“The solution is clear here: take the money and vaccinate as many kids as you can,” said Paul Offit, a vaccines expert at the Children’s Hospital of Philadelphia, who sharply criticized the proposed study as unethical. I’m glad some measure of humanity is being restored here.

theguardian.comControversial US-backed vaccine trial in African newborns haltedHepatitis B study in Guinea-Bissau that was to be funded by CDC and that drew global backlash ‘will not move forward’
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“If they decide to participate in the trial, they have a 50% chance of getting the vaccine for their children. But if they stay out, they have a 0% chance of getting the vaccine. So how can you say that’s a non-coercive informed consent?” Støvring asked.

theguardian.comControversial US-backed vaccine trial in African newborns haltedHepatitis B study in Guinea-Bissau that was to be funded by CDC and that drew global backlash ‘will not move forward’

“The solution is clear here: take the money and vaccinate as many kids as you can,” said Paul Offit, a vaccines expert at the Children’s Hospital of Philadelphia, who sharply criticized the proposed study as unethical. I’m glad some measure of humanity is being restored here.

theguardian.comControversial US-backed vaccine trial in African newborns haltedHepatitis B study in Guinea-Bissau that was to be funded by CDC and that drew global backlash ‘will not move forward’

“There are so many stories in Alaska and so much here that goes uncovered, and there is absolutely no good reason why anyone should be competing at this point,” said Nathaniel Herz, executive editor of The Anchorage Press, a monthly newspaper.

nytimes.comAlaska’s Journalists Join Forces to Cover the MidtermsThe state’s challenging geography and newspapers’ broader economic struggles have stretched reporters in Alaska, just as its competitive U.S. Senate race has grabbed national attention.

“Dozens of news organizations in Alaska have drifted from conventional notions of media rivalry to an all-terrain embrace of collaboration on stories large and small.” Local news makes our communities stronger. In an era of shrinking resources, collaboration can help stretch scarce resources.

nytimes.comAlaska’s Journalists Join Forces to Cover the MidtermsThe state’s challenging geography and newspapers’ broader economic struggles have stretched reporters in Alaska, just as its competitive U.S. Senate race has grabbed national attention.

Rachel Fairbank reposted

BREAKING: The hepatitis B vaccine trial in Guinea-Bissau "will not move forward," the lead researcher says. “The solution is clear here: Take the money and vaccinate as many kids as you can,” @pauloffit.bsky.social told me: www.theguardian.com/world/2026/o...

theguardian.comControversial US-backed vaccine trial in African newborns haltedHepatitis B study in Guinea-Bissau that was to be funded by CDC and that drew global backlash ‘will not move forward’

Rachel Fairbank reposted

The fact that Amy Acton was removed from her mother’s care and went on to obtain an MD and flourish in public health makes her even more of a hero in my eyes. This type of trauma never really goes away. Yet when there was a fork in the road, she chose the one where she helps others. Hero.

“You don’t get misdiagnosed and then all of the sudden I’m better. I haven’t gotten better … If anything, I’ve gotten worse in some ways,” she said. “So I’m back at square one, that I don’t know what’s going on with me.” I wish people would understand 'no diagnosis' doesn't mean 'no illness.'

variety.comChristina Applegate Reveals She Was Misdiagnosed With MS: ‘I’m Back at Square One’ and It’s a ‘Mindf—’Christina Applegate returned to her podcast, "MeSsy," on Tuesday with some shocking news: She was misdiagnosed with MS.
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Despite learning she had been misdiagnosed, Applegate said that her symptoms remain and her illness has now become a mystery. “I have every symptom of someone with MS. Every single one,” she said. I wish more people understood that a formal diagnosis means having some answers, instead of none.

variety.comChristina Applegate Reveals She Was Misdiagnosed With MS: ‘I’m Back at Square One’ and It’s a ‘Mindf—’Christina Applegate returned to her podcast, "MeSsy," on Tuesday with some shocking news: She was misdiagnosed with MS.

“You don’t get misdiagnosed and then all of the sudden I’m better. I haven’t gotten better … If anything, I’ve gotten worse in some ways,” she said. “So I’m back at square one, that I don’t know what’s going on with me.” I wish people would understand 'no diagnosis' doesn't mean 'no illness.'

variety.comChristina Applegate Reveals She Was Misdiagnosed With MS: ‘I’m Back at Square One’ and It’s a ‘Mindf—’Christina Applegate returned to her podcast, "MeSsy," on Tuesday with some shocking news: She was misdiagnosed with MS.

Applegate tearfully shared the revelation in a two-part episode, saying that new technology led to the discovery. “This may come as great news, but to me, I’m back at square one,” she said. “It’s hard to say that [my doctor] came into my room and she said, ‘Congratulations, you don’t have MS.'”

variety.comChristina Applegate Reveals She Was Misdiagnosed With MS: ‘I’m Back at Square One’ and It’s a ‘Mindf—’Christina Applegate returned to her podcast, "MeSsy," on Tuesday with some shocking news: She was misdiagnosed with MS.

Today's bleak thought: Modern journalism has basically become the equivalent of what science was several hundred years ago, where only the people with independent sources of money are able to realistically practice it.

I read an entire book about Ada Blackjack surviving the Arctic, and it never once mentioned that a CAT survived the Arctic with her as well. Meet "Vic," who was brought along for good luck. Clearly, she was good luck for Blackjack. www.nps.gov/articles/000...

nps.govAda Blackjack: Stranded on Wrangel Island (U.S. National Park Service)Ada Blackjack was an Inupiat woman hailed as a heroine and the “female Robinson Crusoe” after being stranded for two years on Wrangel Island north of Siberia. She was part of an expedition party spons...
Rachel Fairbank@sweetsciencewriter.bsky.social

I recently read a book about an Inuit woman who was the only survivor of an Arctic expedition, and now I’m obsessed with scurvy, which one of the expedition members died of. The descriptions of what scurvy is like have me squeezing lemon into my iced tea like I’m about to head off to the Arctic.

As a former athlete who balanced working eight-hour shifts with training before turning professional, she says she has "known fatigue my whole life" and believes the term fails to capture the severity of the illness.

bbc.comBeth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosisBeth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.

I wish it was just fatigue, that would be a walk in the park," she says. "It's so much more than that. If I thought of fatigue in my top 20 symptoms it might just make the cut." Instead, she says, it feels like her entire body "is shutting down; it feels like you are a few days from death".

bbc.comBeth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosisBeth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.

Rachel Fairbank reposted

Earlier this week, I agreed to interviews with two USA Today journalists. They wrote fantastic articles about the Cornell case that I'm proud to have been a part of. What I did not know is that their employer considers interviews to proprietary and opens up recordings to be used by any journalist.

Rachel Fairbank reposted

Replying to @gavinyamey.bsky.social

Exploiting scarcity to experiment on babies is really messed up The ethical action is to use the funding not to advance your list of publications, but to actually give the birth dose to as many newborns as possible. One estimate is that the funds from RFK Jr would cover all newborns for 10 years.

Rachel Fairbank reposted

Replying to @gavinyamey.bsky.social

The RFK Jr-funded Danish researchers might say, "but Guinea-Bissau is too poor to afford the birth dose, so we'll be giving it to half of babies, so these babies will get the life-saving benefits, & we're good people for giving benefits to half" NOPE. You can't ethically exploit poverty/scarcity

Rachel Fairbank reposted

In case you hadn't been following this disturbing sequence of events, here's a recap: RFK Jr wanted to fund a randomized trial, run by Danes, involving newborn babies in Guinea-Bissau Ethicists across the world, including in Nigeria, Cameroon, & Ethiopia, were horrified: it's an unethical study

Prof Gavin Yamey MD MPH@gavinyamey.bsky.social

RFK Jr is funding a grotesquely unethical study on newborn babies in Guinea-Bissau; ethicists, pediatricians, clinical trial experts, & infectious disease experts are calling this horrific trial The New Tuskegee. It is unethical to withhold a life saving intervention from half of newborns FFS.

I’ve mostly optimized my life, so I don’t have to think too much about my physical constraints. Today’s exception was chaperoning a field trip for my son’s class, which involved a lot of standing around. I thought I was going to pass out by the end.

Today’s field trip was a tour of the Astros stadiums. The kids appreciated being able to sit in the dugout; I had fun geeking out over the press box. Also, apparently astroturf was named for…the Astros. I’m a little embarrassed that I never connected the dots before today.

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Everyone involved should work together to ensure that every baby in Guinea-Bissau receives the birth dose of the hepatitis B vaccination, she added. “This is not muddy water: we can use Black babies to further pseudoscience or we can save children’s lives with a 20-cent shot.”

theguardian.comGuinea-Bissau denies it has approved controversial vaccine trial in newbornsHealth minister says government ‘did not authorize’ Danish-led hepatitis B trial in babies backed by RFK Jr
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“The ministry did not authorize the tests under the terms presented in the publications currently in circulation,” the health minister said. He said officials in Guinea-Bissau were “surprised” to see media reports that the country had given approval to the study.

theguardian.comGuinea-Bissau denies it has approved controversial vaccine trial in newbornsHealth minister says government ‘did not authorize’ Danish-led hepatitis B trial in babies backed by RFK Jr

“For the government of Guinea-Bissau to stand up against the United States and Denmark exploiting its children is no small statement,” said Colette Delawalla, a researcher and founder and CEO of the non-profit Stand Up for Science. “We absolutely must respect their sovereignty as a nation.”

theguardian.comGuinea-Bissau denies it has approved controversial vaccine trial in newbornsHealth minister says government ‘did not authorize’ Danish-led hepatitis B trial in babies backed by RFK Jr

“Members of a Danish research ethics committee were informed that officials in Guinea-Bissau had approved an updated design of the study, which influenced some committee members’ votes to proceed with the trial last week. But the health ministry never agreed to or authorized the trial.”

share.googleGuinea-Bissau denies it has approved controversial vaccine trial in newbornsHealth minister says government ‘did not authorize’ Danish-led hepatitis B trial in babies backed by RFK Jr

Rachel Fairbank reposted

Good news Contrary to what the Danish researchers themselves are saying publicly, in fact the government and key health authorities in Guinea-Bissau have NOT approved this highly unethical RFK Jr-funded trial www.theguardian.com/world/2026/o...

theguardian.comGuinea-Bissau denies it has approved controversial vaccine trial in newbornsHealth minister says government ‘did not authorize’ Danish-led hepatitis B trial in babies backed by RFK Jr
Rachel Fairbank@sweetsciencewriter.bsky.social

“The children who are randomly selected not to receive the birth dose of the vaccine, those who “lost the lottery”, face in their earliest days the risk of contracting hepatitis B, which can cause irreversible lifelong damage.” No words. I am speechless. This violates all ethical boundaries.

As an introvert who is also a chronic over-explainer, my entire writing life can be summed up as a see-sawing between writing too much, writing too little, and figuring out when it’s just enough. I am the Goldilocks of writing.

This is several decades behind the times, but I finally read Jon Krakauer’s Into Thin Air, which chronicles his Everest summit, which happened on one of the deadliest days in Everest history. Eight climbers, including his expedition leader, died in a blizzard.

nprillinois.orgWith 'Into Thin Air,' author Jon Krakauer remembers the 1996 Everest disasterIn May 1996, a blizzard struck as multiple climbing teams were attempting to summit Mount Everest.
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“Everest is much safer now. Last year, 2025 was statistically the safest ever on Everest. Only five people died; 846 made the summit. That’s a ratio of one death for every 200 climbers. When I climbed, it was one death for every six climbers who reached the summit.”

nprillinois.orgWith 'Into Thin Air,' author Jon Krakauer remembers the 1996 Everest disasterIn May 1996, a blizzard struck as multiple climbing teams were attempting to summit Mount Everest.

Imagine writing a book about the single most traumatic experience of your life, where a bunch of people you cared about died, only to have people read it and say, “yeah, I want to do that.” At least Everest has gotten a lot safer, probably as a result of Krakaeur’s book?

nprillinois.orgWith 'Into Thin Air,' author Jon Krakauer remembers the 1996 Everest disasterIn May 1996, a blizzard struck as multiple climbing teams were attempting to summit Mount Everest.

This is several decades behind the times, but I finally read Jon Krakauer’s Into Thin Air, which chronicles his Everest summit, which happened on one of the deadliest days in Everest history. Eight climbers, including his expedition leader, died in a blizzard.

nprillinois.orgWith 'Into Thin Air,' author Jon Krakauer remembers the 1996 Everest disasterIn May 1996, a blizzard struck as multiple climbing teams were attempting to summit Mount Everest.