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Here is a story about my Mom who died in 2024 from bvFTD complications: deniseeverhart.substack.com/publish/post... @dementiacommunity.bsky.social @emmawillis.bsky.social deniseeverhart.com
EverlightlyDC
@everlightlydc.bsky.social
I am a humanitarian who wants us all to act like humans. I work for a nonprofit. I am trying to write a book but I keep getting distracted by research tangents. I call out racism and misogyny and will block anyone who DMs me. #Resist
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Here is a story about my Mom who died in 2024 from bvFTD complications: deniseeverhart.substack.com/publish/post... @dementiacommunity.bsky.social @emmawillis.bsky.social deniseeverhart.com
"My mom has a dementia?" I asked the question as plainly as I could because I needed the doctor to say it in words I could understand. This was my mother sitting in the room with us. My mother, who had always seemed larger than the room itself. substack.com/@deniseeverh...
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Music therapy in memory care: What the research says www.care.com/c/music-ther... #Alzheimers #dementia #caregiving #music
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‘Music is like vitamins:’ Singing circle offers support for people with dementia www.altoonamirror.com/news/seniors... #Alzheimers #dementia #music #singing #mentalhealth #happiness
Here is a story about my Mom who died in 2024 from bvFTD complications: deniseeverhart.substack.com/publish/post... @dementiacommunity.bsky.social @emmawillis.bsky.social deniseeverhart.com
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Usually #caregiving falls to the daughter. "Sitting in that small room, I realised then that life had shifted. My #ageing father wouldn’t be able to help much & my older brother is estranged... I would be doing this solo, a single woman w no partner to turn to, caring for [my mother]." #disability
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The ASPIRE-FTD clinical trial has expanded to a fourth cohort, continuing to advance gene therapy research. Read more: ftdregistry.org/press/aspire...
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Here’s a scientific approach to the combined problems of dementia (FTD) and narcissistic personality disorder (NPD). medisearch.io/share/tW9pgM...
I finally put it on the page. "The Wrong Pool" is a memoir about mothers and daughters, caregiving, grief, & the moment you realize you have become the parent. It’s about the lies we tell to protect the people we love, the damage we inherit, & the ways love survives
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The two things that we should do is fight against social welfare cuts and also attack Elon Musk for the chaos he’s creating. And I think that’s something that basically every wing of the party should be on board with. www.nytimes.com/2025/03/18/o...
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They're called public records for a reason. Starting today, WIRED will *stop paywalling* articles that are primarily based on public records obtained through the Freedom of Information Act, becoming the first publication to partner with @freedom.press to offer this for our new coverage.
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Replying to @mattshuham.bsky.social
When the judge gave his order, he told Department of Justice lawyers, "This is something that you need to make sure is complied with immediately," WaPo reports. www.washingtonpost.com/immigration/... Secretary of State Marco Rubio retweeted this "Oopsie... Too late" post from Bukele this morning.
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This is Chuck. Chuck is selling a book. Chuck also has a full-time job. I would consider buying Chuck’s book if he were doing that job, but he’s not. Don’t be like Chuck. And don’t buy Chuck’s book.
It gets worse. Schumer isn’t just going on a book tour—he’s charging for tickets. Absolute insanity. While Americans are scared and in crisis mode, he’s basically saying, let them eat cake. @schumer.senate.gov Step Down.
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Replying to @ezralevin.bsky.social
This was not a close vote. 91% of group leaders voted for national to make this all. 7% said probably, but they needed more time. 2% opposed. We are a locally led movement. When local leaders speak, we listen. We encouage Demorats to rally around someone who can lead the opposition forward.
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The CR was a debacle from top to bottom. Indivisible talked to our group leaders today about what to do next. "...82% of group leaders in New York and 91% of Indivisible group leaders nationwide voted to call for Schumer to step aside as Senate Minority Leader." indivisible.org/statements/i...
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Judge orders HHS, CDC and FDA to restore deleted webpages with health information www.cbsnews.com/news/judge-o...
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I'll go anywhere on behalf of a good cause - and that means engaging people across all the different platforms. Good to be connected here, @maddow.msnbc.com and @lawrenceodonnell.msnbc.com.
@petebuttigieg.bsky.social's new bluesky account gets a shoutout from @maddow.msnbc.com !!!
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JUST IN: Federal judges orders HHS, CDC, and FDA to restore “by no later than 11:59 pm” today their websites and datasets to pre-January 30th status. storage.courtlistener.com/recap/gov.us...