Solve M.E.

Solve M.E.

@solveme.bsky.social

Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.

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Join Solve M.E. leadership for our 2026 Community Address. We’ll discuss how we’re thinking about science and advocacy as we approach the midterms (and what comes after), and your role in what comes next. 🗓 Oct 20 · 1 PM PT / 4 PM ET Recorded + captioned Sign up👇 https://ow.ly/sshh50ZREFm

Myth #6: Doctors cannot help people with ME/CFS. ❌ There are no FDA-approved treatments yet, but doctors can help manage symptoms like poor sleep, pain, and heart issues. Swipe to see what the science shows. ➡️ Part 6 of our six-part Myth vs. Fact series. #MECFS

Myth #5: Long Covid is entirely different from ME/CFS. ❌ Many with Long Covid meet the diagnostic criteria for ME/CFS, including PEM, its main symptom. Swipe to see what the science shows. ➡️ Part 5 of our six-part Myth vs. Fact series. #MECFS #LongCovid #ChronicIllness #MEAwarenessHour

Researchers, do you have questions about your Ramsay Grant application or the submission process? Join us for an informal Q&A with the Solve M.E. team, Thurs., Oct. 22 | 8:00 am PT / 11:00 AM ET Bring your questions—we're here to help! Register: https://ow.ly/Emu050ZYeTM

Myth #4: Only certain groups of people develop ME/CFS. ❌ Fact: ME/CFS can affect anyone, regardless of race, gender, age, or income. Disparities in diagnosis and access to care mean many people go unrecognized. Part 4 of our Myth vs. Fact series. ➡️ #MECFS #HealthEquity

⏰Starting soon! Join us today @ 1 pm PT / 4 pm ET, for "The Solve 2026 Community Address: Shaping What Comes Next." We’re rolling out our plan for the whole year re: science and advocacy, your role in it, and how we win together. Register: https://ow.ly/LitX50ZZ23K

Myth #3: You can exercise your way to recovery from ME/CFS. ❌ Fact: Exercise was once prescribed for ME/CFS, but the guidance has changed. Pushing through can make symptoms worse. Experts now recommend pacing instead. Part 3 of our Myth vs. Fact series. ➡️ #MECFS #Pacing

Multiply your impact 4X! Thanks to two generous donors and our Board of Directors, all gifts to Solve M.E. will be matched 4X through November 30, up to $250,000. Your $25 becomes $100, $100 becomes $400! Give today: https://solvecfs.org/donate/ #MECFS #InvisibleIllness #MatchingGift

📣Join us Tues, Oct. 20 @ 1 pm PT / 4 pm ET, for "The Solve 2026 Community Address: Shaping What Comes Next." We’re rolling out our plan for the whole year re: science and advocacy, your role in it, and how we win together. Register: https://ow.ly/PLmI50ZZ25p

Myth #2: ME/CFS is just about feeling tired. ❌ Fact: The defining symptom, Post-Exertional Malaise (PEM), is far more than fatigue. Even small physical or mental effort can trigger a crash lasting days or longer. Part 2 of our Myth vs. Fact series. ➡️ #MECFS #PEM

Researchers, do you have questions about your Ramsay Grant application or the submission process? Join us for an informal Q&A with the Solve M.E. team! Thurs., Oct. 22 | 8:00 am PT / 11:00 AM ET Bring your questions—we're here to help! Reqister: ow.ly/Emu050ZYeTM

Myth #1: ME/CFS is a mental health condition. ❌ Fact: ME/CFS is a serious biological illness that affects the body’s core systems. For millions, it upends the ability to work, study, or even leave home. Part 1 of our Myth vs. Fact series. ➡️ #MECFS #ChronicIllness

ME/CFS is widely misunderstood, and those misconceptions can have real consequences for people living with the disease. Swipe through as we separate some of the most common myths about ME/CFS from the facts. ➡️ #MEAwarenessHour #MECFS

Researchers at FHCSD seek patients diagnosed or w/ symptoms of Long Covid for the LC-Revitalize treatment study. Participation spans 6 mos, w/8 visits (6 in-person @ a San Diego-based clinic). Contact researchers @ longcovid@fhcsd.org / (619) 324-8677 for more info or to join.

📣Big news from Solve’s research team re: an upcoming funding opportunity for researchers studying #MECFS, #LongCovid, and associated conditions! Stay tuned for more info on October 6 & click the link to learn more about our Ramsay Research Grant Program. https://ow.ly/WnOh50ZUEte

Today, we're celebrating advocacy in action! Advocate & caregiver to her son, Gabe, Rebecca Groble secured an Illinois Senate Resolution acknowledging the prevalence & impact of ME/CFS across the state. Thanks, Rebecca, for your dedication to raising awareness! #MEAwarenessHour

Join Solve M.E. leadership for our 2026 Community Address. We’ll discuss how we’re thinking about science and advocacy as we approach the midterms (and what comes after), and your role in what comes next. 🗓 Oct 20 · 1 PM PT / 4 PM ET Recorded + captioned Sign up👇 https://ow.ly/sshh50ZREFm

Today at 3 pm PT / 6 pm ET! Join us for a free webinar with Brain Inflammation Collaborative (BIC) to discuss how using the unhide® real-world data platform can help you recognize health patterns & trends to support conversations with healthcare providers. Register here: https://ow.ly/o1Iq50ZyLBO

1/ News reports say the administration is drafting an executive order to create a committee that could override expert scientific review of NIH grants, shifting funding decisions away from scientific merit.

2/ Giving political appointees that power risks new barriers and delays for people with ME/CFS, Long Covid & other chronic diseases, when they can least afford them. Fund the strongest science, on the merits. Patients have already waited long enough.

Today is the last day to comment on a proposed reorganization by the National Inst. of Allergy & Infectious Diseases (NIAID) eliminating its Div. of Clinical Research--the infrastructure behind clinical trials. Learn how to share your own comments: https://ow.ly/GI7N50ZOWV0

📣Tomorrow is the last day to publicly comment on a proposed reorganization by the Natl. Inst. of Allergy & Infectious Diseases (NIAID) eliminating its Division of Clinical Research — the infrastructure behind clinical trials. Learn how to share your own comments hree: https://ow.ly/1EnG50ZOWXS

Sign up for the CDC ME/CFS Stakeholder Engagement & Communication (SEC) Call - 'How Progress in Long COVID is helping us understand ME/CFS,' w/ Dr. Nancy Klimas + program updates from CDC's ME/CFS program staff & a Q&A. Fri., Sept. 18, 2026, 12-1:30 PM ET / 3-4:30 pm PT. https://ow.ly/jCMK50ZMVux

1/ 🚨Take action by Friday! NIAID has proposed eliminating its Division of Clinical Research — the infrastructure behind its clinical trials — on a public comment window of just five days. #MECFS #LongCOVID

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3/ The details went up only as the 5-day window opened. A change this consequential deserves real time for patients, families, researchers, and clinicians to actually review it.

1/ 🚨Take action by Friday! NIAID has proposed eliminating its Division of Clinical Research — the infrastructure behind its clinical trials — on a public comment window of just five days. #MECFS #LongCOVID

2/ That division keeps a trial’s core functions in one place: study design, biostatistics, safety monitoring. NIAID also leads RECOVER-TLC, the current round of NIH’s Long COVID treatment trials — which are only now beginning to enroll.

Big news! BioVie announced positive results from the ADDRESS-LC trial assessing the potential impact of the drug bezisterim on cognitive impairment/brain fog and fatigue in people with #LongCovid. 🧵

Solve fought for the inclusion of Long Covid in the Congressionally Directed Medical Research Programs (CDMRP) that funded the trial, and assisted with trial recruitment.

Family Health Centers of San Diego (FHCSD) seeks patients diagnosed with or have signs & symptoms of #LongCovid to join the treatment study"LC-Revitalize." Participation spans 6 mo, with 8 visits (6 in-person @ a SD- based clinic). To join or learn more: longcovid@fhcsd.org or (619) 324-8677.

Congress voted to delay through Dec. 11 a rule that lets political appointees cancel federal grants, incl. active clinical trials, overriding the peer review process. We fought for this delay, now ask Congress to end the rule permanently. Use our toolkit: https://ow.ly/xQtc50ZIrwH