Lupus Foundation of America

Fate Therapeutics announced early results for FT819, an investigational CAR T-cell therapy that showed encouraging kidney responses in adults with active #lupus nephritis. Findings offer hope for future treatment. Read the announcement: buff.ly/d71GQi4

💜 Meet Coralline. Diagnosed with #lupus at 3. Through LFA, she found information on research, support groups, and more. Her photos reflect the realities of childhood lupus and what it means to grow up managing the disease. ➡️ Share your life with lupus: buff.ly/aHzAVLe

💜 Calling clinics and healthcare providers serving people with #lupus! We’re offering up to $9,000 to eligible clinical settings to help connect patients with free, evidence-based lupus self-management resources through referrals. 📅 Apply by 12/1: buff.ly/tuMYDMl

🏃💜 2026 Racing to End Lupus runner Nathan Lechner was featured in 07090 Connect! He’s taking on the 2026 TCS New York City Marathon to raise #lupus awareness and funds for research, inspired by his family’s connection to lupus. Read his story: buff.ly/SHoZZGt #TCSNYCMarathon

How does #lupus affect the body? 🤔 Put your knowledge to the test with this quick quiz and let us know how many you got right in the comments! Lupus can affect any part of the body, including the skin, joints, kidneys, and more. Learn more: buff.ly/KRS8edW

LFA marked 20 years of Medicare Part D at MAPRx’s 20th Anniversary Summit. The message was clear: patient voices must stay central to conversations about access and affordability. Read the highlights from the event: buff.ly/VDIh0wg

Are mental health conditions common in people with systemic #lupus erythematosus? A new study finds conditions are common along with higher acute care usage. Read the study: buff.ly/d8PWXMF

💜 #Lupus warrior Marci joined KENS 5 San Antonio to share her story and spread the word about the San Antonio Walk to End Lupus Now happening this Saturday, October 24. Hear from Marci and learn how to join us: buff.ly/ycQLckG

💜 Meet Ambra. Diagnosed at 20. From hospital visits to everyday moments in between, her photos show the many sides of life with #lupus. By sharing her experiences, Ambra is helping others see the strength it can take to navigate each day. ➡️ Share your life with lupus: buff.ly/aHzAVLe

New research in adults with #SLE suggests that commonly used patient-reported outcome measures do not all respond equally to changes in disease activity over time. Read the study: buff.ly/Zt1vV3k

We’re celebrating 6 years of Research Accelerated by You (RAY), LFA's online lupus registry, powered by people living with #lupus. Sharing your experiences help researchers understand real-world treatment effects and drive solutions. Add your voice: buff.ly/JDHybYB

The @fda.gov has granted Fast Track designation to EG-501, an investigational treatment for cognitive impairment in adults with #NPSLE. Larger studies are planned to further evaluate its safety and efficacy. Read the announcement: buff.ly/1D7IPGf

Missed last week’s Lupus & You: Embracing Skin Care? Check out the event’s recap blog, which features responses to audience questions by our Health Education Specialists, as well as a recording of the event: buff.ly/ZwdAri8

Lupus Science & Medicine, our open-access journal, has achieved an updated 2025 Journal Impact Factor of 4.3, up from 4.2! This marks the highest current Impact Factor of any #lupus-specific journal. Explore the latest #lupusresearch: buff.ly/xi5qaLT

💜 Have an idea to raise #lupus awareness on campus? We’re offering up to $5,000 for activities through our Be Fierce. Take Control. campaign, focused on Black/African American and Hispanic/Latina women ages 18–25. Learn more and apply by 11/1: buff.ly/NUtfzWO

📣 Join #lupus warriors at the 2027 National #LupusAdvocacy Summit, April 4-6! Connect with advocates, attend educational sessions, hear the latest lupus research updates and share your story with elected officials to help drive change. 💜 Save the date and learn more: buff.ly/ZVdj82S

🏃💜 Two weeks until the TCS New York City Marathon! Our Racing to End Lupus team has already raised over $65K to support our mission to end #lupus as they prepare to take on 26.2 miles! Join us in cheering them on and get to know the runners: buff.ly/JMqBmKY #TCSNYCMarathon

💜 Lupus warriors Tisa and Chelsea joined @wkrnnews2.bsky.social to raise awareness about #lupus and encourage the community to join the Tennessee Walk to End Lupus Now on October 24. Watch the interview and learn more: buff.ly/VJvdY3v

Help bring #lupus resources to more communities! 💜 We’re offering up to $4,500 to eligible organizations to distribute lupus self-management guides and support people with lupus who may have limited access to digital tools. 📅 Apply by November 2: buff.ly/k3yM55c

For 20 years, Medicare Part D has helped #lupus patients access the medications they need. On 10/20, LFA is proud to join MAPRx for the Medicare Part D 20th Anniversary Summit to discuss patient access, affordability, and next steps. Register here: buff.ly/cT0aLiU

⏳ The final #WalktoEndLupusNow events of the year are almost here! This is your last chance to walk, fundraise, and stand with #lupus warriors this year. Every walker and every dollar raised fuels the fight to end lupus. Find a walk near you and register before it's too late: buff.ly/VoNd2Lt

💜 Spend the day with #lupus warrior Mo’Nay at the #WalkToEndLupusNow in Los Angeles! Follow along as she gets ready, meets up with her family and Team Mimi, and joins the lupus community for the Walk. Find a walk near you: buff.ly/VoNd2Lt

Thank you to everyone who joined our Lupus & You event: Embracing Skin Care! If you missed the event, don’t worry! Check out all of the resources available and the event recording, and keep an eye out for our next event: buff.ly/mb8XVik

Tonight’s the night – join us at 7PM ET for our free Lupus & You event: Embracing Skin Care! Hear from our dynamic panel of speakers as they discuss protecting your skin from UV exposure and navigating cosmetic procedures safely. Register today! ⬇️ buff.ly/8ibih25

It’s not too late to register for our Lupus & You event tomorrow night Embracing Skin Care. Listen as our speakers discuss practical tips on protecting your skin, navigating cosmetic procedures safely, and choosing the right products. Register today! ⬇️ buff.ly/bwLYbOO

Have you ever looked in the mirror and felt like you no longer recognize yourself? 💜 After years of living with #lupus, Phara has experienced how skin changes can impact confidence. Join us on 10/14 to discuss skin health, confidence, and more: buff.ly/bwLYbOO

Living with #lupus can change the way you care for your skin. 💜 For Alyssa, navigating skin sensitivities and sun protection have shown her that skin care is about more than appearance. Join us on 10/14 to learn how to protect your skin and confidence: buff.ly/bwLYbOO

👟 #WalktoEndLupusNow is going strong! ➡️ Swipe to see highlights from across the country, where walkers showed up for the #lupus community this October. There's still time to join us. Find a walk near you and register today: buff.ly/VoNd2Lt

“To know her was to love her.” 💜 After losing her mom, Rachel carried her legacy into Inspira. Her memory inspired its butterfly logo and commitment to give back as a Purple for Purpose partner. Read their story: buff.ly/DuBpsQI

Join us next week as our dynamic panel of speakers discusses practical strategies for protecting your skin from UV exposure, navigating cosmetic procedures safely, and choosing the right products. Register today ⬇️ buff.ly/GnR5Pl0

🆕 A new episode of The Expert Series is live! Dr. Feldman shares ways people with #lupus can manage their care when regular access to a rheumatologist is limited, from preparing for appointments to navigating medications and telehealth. 🎧 Listen now: buff.ly/mczDi0V

Nearly 2,000 lupus warriors, families, friends and supporters filled NYC with purple for #WalktoEndLupusNow! 💜 Lupus warriors and LFA CEO Louise Vetter spoke with PIX11 about the impact of lupus, the power of community and lupus research. Watch now: buff.ly/fPqSayt

Adicet Bio reported early results from a Phase 1 study for prula-cel, an investigational CAR-T therapy being studied in people with #lupus, including lupus nephritis. Read more here: buff.ly/kCW0RBF

A new study found more than 80% of adults with #lupus reported using dietary supplements, and nearly 1 in 3 had a potential supplement-medication interaction. Findings highlight the importance of discussing supplement use with providers. Read more: buff.ly/jcl4rJY

✨ lupus charity last milestone update ⭐ I decided on the Upcoming Sakuraco snack box 🎁 We'll be trying snacks on stream on twitch or discord, whichever works in the time it arrives! Thank you for patience and the support given during fundraising! You can always donate to lupus.org @lupus.org

We’re 2️⃣ weeks away from our October 14 Lupus & You webinar: Embracing Skin Care! Join us for this free event to hear tips on protecting your skin from UV exposure, navigating cosmetic procedures safely, and choosing the right products. Register today: buff.ly/GnR5Pl0

💜 Meet Mi'yana, diagnosed with lupus at 15. Through the LFA, she's expanded her knowledge and found she's not alone. From hospital visits to everyday moments in between, Mi'yana is showing what her life with lupus looks like. ➡️ Share your photos today: buff.ly/RLzbMre

⏰ Today is the last day of our budget year. Your support helped 7,000+ people access #lupus webinars, brought 2,700 together at Empowerment Conferences, connected 3,000+ people with support, and much more! Help continue this support in the year ahead: buff.ly/CmTncwA

Deadline extended! 🏃 Applications to join our inaugural Race to End Lupus team at the 2027 TCS Dobule London Marathon are now open through October 19. Make your miles matter for people impacted by #lupus. Apply today: buff.ly/4JsUvBx #LondonMarathon

DC, you brought the energy! 💜 Thank you to everyone who walked, fundraised, and showed up for our #lupus community at Walk to End Lupus Now. Here’s a look at some of the fun we shared! Keep the momentum going! Find a Walk near you: buff.ly/sUaKvWn