Eating Disorders Genetics Initiative

Hi BlueSky! We're EDGI UK, an online research study exploring the genetic and environmental influences of all eating disorders Our study is open to anyone ⭐16+ ⭐residing in England ⭐Has ever experienced an eating (diagnosis not required) Join today: edgiuk.org

🚨NEW PREPRINT ALERT!🚨 Jacob Knyspel investigated the moderating impact of exposure to different traumas on genetic risk for PTSD, using data from @ukbiobank.bsky.social, @gladstudy.bsky.social, @edgiuk.bsky.social and @nihrbioresource.bsky.social 1/3 www.researchsquare.com/article/rs-8...

🗣️ Give peer supporters a seat at the table. Lizzie Mitchell warned that without valuing their voices, we risk burnout and moral injury in peer workers. 🎥 Watch Lizzie (from 27:45): buff.ly/ESrkyQz #PeerSupport #MentalHealth #Recovery

The Eating Disorders Genetics Initiative @edgiuk.bsky.social needs you! EDGI are looking for people with experience of any eating disorder (formal diagnosis not required!) to take part in their groundbreaking research on eating disorders. ⭐Be part of change. Sign up now👉 edgiuk.org

Ketamine is a fast-acting antidepressant that works even for patients who don't respond to other medication. The @kingsioppn.bsky.social discovery that the drug's antidepressant effects involve the brain’s opioid system offer insight into how it treats depression. www.kcl.ac.uk/news/ketamin...

; weight loss jabs are "functioning as medically-prescribed eating disorders." 👏🏻👏🏻 sadly, this is 100% accurate and making the jab so widely available will cause untold amounts of harm. this article is well worth a read. via @dumpthescales.bsky.social www.endeatingdisorders.org/post/from-wh...

A privilege to be back in Parliament this week for an event organised as part of the APPG on Eating Disorders with @hopevirgo.bsky.social and @werahobhouse.bsky.social. A wonderful opportunity to chat about EDCRN @edgiuk.bsky.social and the importance of continued investment in ED research.

Thank you so much for joining us yesterday @paulkohlersw19.bsky.social at the APPG for Eating Disorders and for always being such a huge supporter of our campaigning work! We're sure the @edgiuk.bsky.social team loved meeting you and chatting all things research and genetics!

@edgiuk.bsky.social EDGI UK paper alert - in this paper RA and PhD student Saakshi Kakar worked on using the free text responses in EDGI and also the GLAD study @gladstudy.bsky.social to find new information about eating disorder symptoms.

Thank you so much to everyone who came along including @edgiuk.bsky.social, @rachelegan.bsky.social, @priyatew.bsky.social @annacarnegie.bsky.social and of course a huge big thank you to @werahobhouse.bsky.social @hopevirgo.bsky.social for pulling it altogether!

I hosted eating disorder experts & campaigners in Parliament today. For too long, eating disorders have been misunderstood - it was therefore great to offer an opportunity to improve ED awareness. Thank you to @edgiuk.bsky.social, @dumpthescales.bsky.social & @edcrn.bsky.social joining us🤝

📊 We text-mined 1,675 responses from participants in @gladstudy.bsky.social & @edgiuk.bsky.social who had anorexia nervosa, bulimia nervosa, or binge-eating disorder Many described behaviours that weren’t part of standard clinical or research assessments, but were harmful and clinically relevant

Great job @saakshikakar.bsky.social!

New research from @kingsioppn.bsky.social @nihrbioresource.bsky.social has identified a range of weight loss behaviours associated with #eatingdisorders which are not currently included in assessment criteria: www.maudsleybrc.nihr.ac.uk/posts/2025/j... 📽️First author Saakshi Kakar explains:👇

@karinaallayne.bsky.social @nihr.bsky.social @edgiuk.bsky.social @gladstudy.bsky.social

We're hosting a drop-in session next Wednesday over lunchtime where you can meet the #DumpTheScales and @edgiuk.bsky.social teams to find out more about our work around eating disorders. We'd love to have you there @paulkohlersw19.bsky.social and @steffanaquarone.bsky.social 🙌

🧠Autistic people with EDs face unique barriers to care. This paper explores how the #PEACEPathway—a tailored, autism-informed ED approach—improves engagement. 8 key domains emerged, leading to a practical self-assessment checklist for services. www.mdpi.com/2072-6643/17...

How do we make #EatingDisorder treatment more inclusive to Autistic people? One way is the 'PEACE Pathway', led by IoPPN's Prof Kate Tchanturia, a treatment that adapts to the individual – not the other way around. #AutismAcceptanceMonth Read more: www.kcl.ac.uk/making-eatin...

How do we untangle the mind-body connection to better treat chronic pain? IoPPN researcher Dr Lauren Heathcote, PhD joined Science Friday for a discussion on a new psychological treatment that shows early promise in eliminating chronic back pain. Listen now: www.sciencefriday.com/segments/chr...

The authors text-mined free-text responses from 1,675 participants with anorexia nervosa, bulimia nervosa, or binge-eating disorder from the GLAD Study and @edgiuk.bsky.social‬ 2/5

We’re excited to share the news that @edgiuk.bsky.social is now collaborating with the @broadinstitute.org of MIT and Harvard. The Broad Institue will sequence the exomes of EDGI UK participants diagnosed with eating disorders. www.maudsleybrc.nihr.ac.uk/posts/2025/m... @psychgenomics.bsky.social

Interested in taking part in #eatingdisorders research? Browse the @maudsleynhs.bsky.social website for studies like @edgiuk.bsky.social which are currently recruiting, and search by condition. 👉 slam.nhs.uk/take-part-in... #EDAW #BePartofResearch @edifyresearch.bsky.social

Everyone’s posting their #SpotifyWrapped, but let me introduce you to a different ‘wrapped’... EDGI UK wrapped 2024!🔬 Thank you to all our participants, we could not do this without you. Go to edgiuk.org for more information!

Boundaries are key🔐 Honour your limits and respect others’ Whether it’s avoiding tough topics or taking a break from crowded events, try to protect your peace and relationships. For support, @beated is available. edgiuk.org

Hello Bluesky! We are the EDCRN, an initiative working to establish a UK-wide research network spanning child and adult eating disorder services.